Lewy Body Dementia: Information for Patients, Families, and Professionals
National Institute on Aging
Alzheimer’s Disease Education and Referral (ADEAR) Center
National Institute of Neurological Disorders and Stroke
Lewy Body Dementia Association
1-800-539-9767 (toll-free LBD Caregiver Link)
1-404-935-6444 (national office)
Michael J. Fox Foundation for Parkinson’s Research
National Parkinson Foundation
1-800-473-4636 (toll-free helpline)
Parkinson’s Disease Foundation
1-800-457-6676 (toll-free helpline)
Support Services and Resources
This service of the U.S. Administration on Aging connects the public to community services for older adults and their families.
Family Caregiver Alliance
The Alliance provides information and referral, education, and other services to caregivers of people with chronic, disabling health conditions.
For Children and Teens
Although the following Alzheimer’s organizations are not specific to Lewy body dementia, their dementia-related resources and networks may be helpful for children and teens.
ADEAR Center Resources for Children and Teens
Alzheimer’s Association Kids & Teens
Alzheimer’s Foundation of America (AFA) Teens
Diagnosis, Treatment, and Research
The Lewy Body Dementia Association (LBDA) maintains a list of its scientific and medical advisors. Many of these physicians see patients at their clinics or may make referrals to other specialists in your area. See www.lbda.org/content/lbda-scientific-advisory-council-sac. For general tips on finding a doctor, visit www.lbda.org/content/finding-doctor-diagnose-and-treat-lbd.
The Alzheimer’s Disease Education and Referral Center maintains a list of research centers funded by the National Institute on Aging at NIH where you may find medical specialists in Lewy body dementia: www.nia.nih.gov/alzheimers/alzheimers-disease-research-centers. Professionals may also find dementia resources.
The American Academy of Neurology has a “find a neurologist” page on its website: http://patients.aan.com/findaneurologist
The American Association for Geriatric Psychiatry has a physician finder on its website: www.gmhfonline.org
Publication Date: September 2015
Page Last Updated: September 29, 2015